Friday, April 15, 2011

Update on my Marlee Girl

Most of you know that my Marlee Girl has been through some rough trials this past year. But be of good cheer! She is an amazing spirit and has bore her testimony of how much her Father in Heaven and her Savior love her!!! She has had two surgeries, one involving tonsils and adenoids and clearing her airway of lymphoid tissue, and in December she had a whopping nasty surgery involving drilling a hole in her beautiful tiny back and taking out the most massive kidney stones they had ever seen! Turns out she has this super rare genetic kidney disease. So we will be visiting our great doctors Dr Ahn and Dr Copelan alot. But we love childrens hospital in st louis, so we are blesed. We visited the geneticist in st louis couple weeks ago and we have also found out that Marlee has a rare disease called Neurofibromatosis ( google it, its fascinating yet scary!) She is now going to be visiting Dr Guttman in the NF clinic at childrens also. We go on May 12th to visit them. While Marlee has been in the hospital we have been super blessed by an amazing child life team and super great nurses. They pampered her and spoiled her! They do that with every patient there, and it is amazing. We are actually holding a fundraiser for the child life team-- you go to or and search for representative Kaylor in Missouri. Whatever you order from those two sites, the entire profit will be going to Childrens Hospital! - when we go to visit the hospital on May 12th, we will be stopping to purchase all kinds of goodies to donate! Crafts, books, movies, stuffed animals ( the nurses love to leave presents on the patients beds after a particularly rough night, so the patients have a surprise when they wake up!) and ill tell you what, the parents rooms need some new magazines hahaha! We are gonna load up the wagon and roll all the goodies right on up to the patient playroom where we can shower everyone with gifts!!!! I cant wait!!ok, i am going to upload some pics in the next few posts, of Marlee and the patient playroom and all that kind of thing. Thank you so much to everyone who has prayed for Marlee girl. Your prayers are so appreciated. ;)

Friday, April 8, 2011


Marlee had a genetics appointment in st louis couple weeks ago, we decided to make a family day of it and head to the zoo! We picked a gorgeous day!

Birthday Party Fun! Mel's Birthday

One of the girls' best friends held a dolly and me tea party for her birthday! The girls loved it!

Official Christmas Picture and to many presents

Christmas party at our house 2010

We had our friends over for a little christmas party --we made gingerbread houses, made choc covered pretzels, made ornaments and ate lots and lots of pizza while listening to christmas music! :) we love our friends!

Halloween 2010

We love halloween! We are more of the pumpkins and candy type people, not the scary stuff. For halloween this year the kids were: Dylan-Super Mario, Marlee-Fancy Nancy, and Syd was a pink skeleton. We went to so many fun events with friends. We went to a neat church party in quincy, the kids played on the jump jumps, entered a halloween contest ( syd won her age group!) we ate hot dogs and drank to much hot cocoa and bought to many cookies at the bake sale. Halloween night we went trunk or treating around to local churches, went on a hay ride, played outside and once again drank to much hot cocoa! The kids love to visit the senior citizens where aunt vonnie lives and we just had an all around great time!

A jump in the leaves

One of my favorite things to do as a kiddo in the fall was to jump in the leaves. I would pretend i was a baby bird and I would make a nest of leaves, then jump out of the swing and land in my nest. Of course I thought I could fly. We took the kids and our neighbor friend to Riverview Park here in Hannibal and we had a blast jumping in the leaves - yes even mommy and daddy jumped in the leaves! What a fun day!

Pumpkin Patch 2010

Another family tradition- a visit to Mill Creek Farms for a hayride and pumpkin picking out! I have pics of the kids from the last probably 4 years at least in front of the how many pumpkins tall this fall sign! :)

Arts Council Quincy Playday

We love to do activities as a family, and one fall day we had a blast at the Arts Council in Quincy! We got to watch dancers and make pictures and hats!:) The best part was when the wind blew Marlee's picture onto daddy's tshirt and he looked like a tie dyed hippy! :) ps- isnt my husband handsome?? :)

Birthday Party Fun ! Bradens Birthday

Our little nephew Braden is a hoot!! Keith and I love being auntie and uncle! We have so many adorable nieces and nephews, we are blessed! These are a few pics from nephew Bradens birthday party! It was alot of fun! :) Dont forget personal paddle boat rides from daddy/uncle keith! :)

Apple Festival 2010

It is a family tradition to go to Barry's Apple Festival each year. I did it as a kid, and now my kids get to! They had a blast! Big ole parade, rides and good food! :) Dont forget oodles of cousins and good friends!!

Dylans first cub scout patch!

So Dylan doesnt get to go to cub scouts a whole lot, because of his immune system, but he was sooo excited to get to earn his first patch! This is him and his beloved cubscout master Al. They are two peas in a pod! Good job Dyl!!

Im back!

I havent had a computer in so long! I have so much to catch up on! I put up some flags around the blog to celebrate! :)
love, jl